Who are we?

An initiative of the European Federation of Neurological Associations [EFNA] and Pain Alliance Europe [PAE], co-chaired by MEPs Marian Harkin, Jeroen Lenaers and Daciana Sârbu.

Our aim is to encourage research into and access to innovative treatments, promote prevention and self-management approaches, decrease stigma and work together to improve quality of life for people living with these disabling conditions.

We are calling on European policy-makers – via the Institutions and Members States – to:

Support patient-led campaigns to educate, eradicate stigma and raise awareness of neurological and chronic pain disorders
Support research into the development of innovative prevention and treatment options within a regulatory framework which facilitates equitable access to affordable therapies
Strengthen patient involvement in this research, and in policy-setting and decision-making
Implement relevant European social legislation to ensure appropriate support for people living with neurological and chronic pain disorders

Pain Alliance Europe (PAE) is a Pan- European umbrella organisation of 33 national associations in 16 EU Member States. These organisations represent nearly 400,000 individual chronic pain patients. For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live his life according to his possibilities.



EFNA-logoThe European Federation of Neurological Associations [EFNA] is an umbrella group representing pan-European neurology patient groups. Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our Members – allowing them to be the most effective advocates possible in their own disease specific areas. EFNA embraces the concept of Partnership for Progress – working at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.

This initiative has been made possible through support from


Got two minutes?

Watch our introductory video.

Got five minutes?

Read our short two-page briefing document.

Got twenty minutes?

Read our Book of Evidence (or download it now and read it at your leisure! )