Who are we?

An initiative of the European Federation of Neurological Associations [EFNA] and Pain Alliance Europe [PAE], co-chaired by MEPs Marian Harkin, Jeroen Lenaers and Daciana Sârbu.

Our aim is to encourage research into and access to innovative treatments, promote prevention and self-management approaches, decrease stigma and work together to improve quality of life for people living with these disabling conditions.

We are calling on European policy-makers – via the Institutions and Members States – to:

Support patient-led campaigns to educate, eradicate stigma and raise awareness of neurological and chronic pain disorders
Support research into the development of innovative prevention and treatment options within a regulatory framework which facilitates equitable access to affordable therapies
Strengthen patient involvement in this research, and in policy-setting and decision-making
Implement relevant European social legislation to ensure appropriate support for people living with neurological and chronic pain disorders

Pain Alliance Europe (PAE) is a Pan- European umbrella organisation of 33 national associations in 16 EU Member States. These organisations represent nearly 400,000 individual chronic pain patients. For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live his life according to his possibilities.

 

 

EFNA-logoThe European Federation of Neurological Associations [EFNA] is an umbrella group representing pan-European neurology patient groups. Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our Members – allowing them to be the most effective advocates possible in their own disease specific areas. EFNA embraces the concept of Partnership for Progress – working at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.

This initiative has been made possible through support from

WANT TO LEARN MORE ABOUT US? HERE’S HOW.

Got two minutes?

Watch our introductory video.

Got five minutes?

Read our short two-page briefing document.

Got twenty minutes?

Read our Book of Evidence (or download it now and read it at your leisure! )

 

Read our Annual Report for 2016

 

Read our Annual Report for 2015