Web Release on Social Pillar

European Pillar of Social Rights presents new and significant step forward

EFNA and PAE welcome the European Commission’s Work-Life Balance Package

 

The European Federation of Neurological Associations (EFNA) and Pain Alliance Europe (PAE) warmly welcome the European Commission’s new legislative initiative to grant carers across Europe minimum rights to leave and to flexible working arrangements.

The European Federation of Neurological Associations (EFNA) and Pain Alliance Europe (PAE) coordinate the MEP Interest Group on Brain, Mind and Pain.  Working together, they contributed to the Social Pillar consultation http://bit.ly/2rgGmSm

Ann Little, President EFNA, described the introduction of five days paid leave per annum for working relatives of the sick and elderly as ‘A great step forward’ and said, ‘We will be working with allies in the European Parliament to build on that as part of our campaign to #MakeWorkWork’.

Ann commended the Commission’s recognition of the huge contribution of carers in the new Directive which extends the right to request flexible working arrangements – reduced working hours, flexible working hours and flexibility in place of work – to all carers with dependent relatives.

Across Europe, millions of people of all ages struggle with brain, mind and pain disorders.  These are long-term conditions that severely impact the quality of life, often leading to considerable disability and sometimes to reduced life expectancy.

Informal caregiving currently affects economic productivity considerably through lost opportunity for the caregiver to undertake paid work and a lack of tax revenues from the unpaid work. i

The Directive notes people with disabilities have the right to income support that ensures living in dignity, services that enable them to participate in the labour market and in society, and a work environment adapted to their needs.

Together, EFNA and PAE will continue to urge the 28 Member States to implement cost-effective retention, reintegration and rehabilitation actions for people with chronic brain and pain diseases.

 

The groups will also continue to urge the European Commission to work in close cooperation with the Member States and social partners, to clarify patients’ rights, highlight successful workplace adjustments and reintegration actions – e.g. flexible working hours – and to promote the use of the European Social Fund for such actions.

We will be working to ensure the Work-Life Balance Package is strengthened during negotiations with the European Parliament and 28 Member States.

 

¹ The total cost of dementia in the EU in 2008 was estimated at €160 billion, of which 56% (€90 billion) were costs associated with informal care. Across Europe, caregivers of people with chronic pain provided an average of 27.5 hours of care per week. This ranged from 9.9 hours per week in France to 48.7 hours per week in Italy.

 

For more information, please visit:

  • https://ec.europa.eu/commission/priorities/deeper-and-fairer-economic-and-monetary-union/european-pillar-social-rights/european-pillar-social-rights-20-principles_en

 

Contact details: 

Heather Clarke, EU Senior Policy Affairs, EFNA

Email: euaffairs@efna.net

 

About The European Federation of Neurological Associations (EFNA)

 

The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations with similar aims including the European Patients Forum (EPF) and the European Brain Council (EBC). EFNA’s aims are to improve the quality of life of people with neurological disorders, their families and carers by working in four strategic areas:

Awareness – Advocacy – Empowerment – Engagement.

 

About Pain Alliance Europe

 

Pain Alliance Europe (PAE) is a Pan-European organization of national and or regional associations involved in chronic pain regardless any underlying condition. At this moment PAE has 34 members from 17 different EU countries which in turn represent over 350.000 individual chronic pain patients. Those 34 associations are working together to achieve PAE’s mission: to improve the quality of life of people living with chronic pain in Europe.

Optimising the european Social Pillar to #MakeWorkWork for those affected by Brain, Mind and Pain Conditions

MEP Interest Group on Brain, Mind and Pain, in partnership with MEP Interest Group on Mental Health, Wellbeing and Brain Disorders organise a Lunch Meeting in the European Parliament, hosted by Marian Harkin MEP.

SAVE THE DATE

BMP-CircleLogo-RGB-114

March 8th 2016 – 12.30 to 14.00

European Parliament, Brussels

 

 

Registration from 11.30hrs (on steps outside Parliament)

Sandwich Lunch from 12.00 – 12.30hrs
European Parliament, Brussels

Download the Agenda of the event

 

 

 

WANT TO LEARN MORE ABOUT US? HERE’S HOW.

Got five minutes?

Read our key messages document.

Got twenty minutes?

Read our Book of Evidence (or download it now and read it at your leisure! )

Want to get more involved?

Download our Advocacy Toolkit and see how you or your organisation can take our messages to your MEPs

More information in your language